Enti di beneficenza che sosteniamo
Please help Cannonbawz raise funds for The Marfan Trust
Working and volunteering for charities is incredibly hard work. Showing your support by giving financial donations not only furthers research into this rare condition, but rewards and motivates all those who give freely of their time, energy and emotion, to make a difference.
Qual è la nostra storia e perché sosteniamo questi enti di beneficenza?
It all started with a poster on LinkedIn, advertising the ‘Cannonbawz Run’ in Scotland. MD Irwen Martin has a passion for performance cars, on and off the road. The Cannonbawz Run originated by Kris O’Neill, immediately presented itself as an opportunity to enjoy performance cars AND raise money for charity at the same time.
Kris’s brother Liam was diagnosed with Marfan Syndrome, and as a family, they searched for support and answers. It became clear that funding was needed for essential research into the condition. Kris made it his mission to start fund-raising and the ‘Cannonbawz Run’ was born in 2015, an organised run for car and scenery lovers to enjoy a 250 or 500 mile drive around Scotland’s North East coast.
Being a participant raises funds and talking about it raises awareness, and so does sharing posts and information on social media channels and websites. So there is something that everyone can do – please check out the links below, find out more, and share what you discover.
Please contact Kris on LinkedIn if you would like to support, sponsor or participate in the Cannonbawz Run.
Chi è il Marfan Trust?
I tre obiettivi principali del Marfan Trust sono:
- Fornire supporto e guida medica alle persone colpite e alle loro famiglie;
- Fornire letteratura educativa sulla sindrome di Marfan e tutti i suoi aspetti alla professione medica e al pubblico in generale, aumentando così la consapevolezza della condizione; e
- Finanziare progetti di ricerca medica che mirano ad aiutare la diagnosi e il trattamento dei pazienti con sindrome di Marfan
Sindrome di Marfan
La sindrome di Marfan è un disordine ereditario del tessuto connettivo del corpo che porta a problemi medici che colpiscono il cuore, gli occhi e lo scheletro, richiedendo un trattamento per prevenire complicazioni pericolose per la vita.
Colpisce uomini, donne e bambini di qualsiasi razza o gruppo etnico. Più di 18.000 persone sono affette dalla sindrome di Marfan nel Regno Unito, e molte altre probabilmente convivono con essa senza essere state diagnosticate.
What is Cannonbawz really like?
It’s Fun, it’s Family-Friendly and it’s for Everyone from All walks of Life!
Take a quick look at these movies to get a flavour then check out their website
