Organizaciones benéficas que apoyamos
Please help Cannonbawz raise funds for The Marfan Trust
Working and volunteering for charities is incredibly hard work. Showing your support by giving financial donations not only furthers research into this rare condition, but rewards and motivates all those who give freely of their time, energy and emotion, to make a difference.
¿Cuál es nuestra historia y por qué apoyamos a estas organizaciones benéficas?
It all started with a poster on LinkedIn, advertising the ‘Cannonbawz Run’ in Scotland. MD Irwen Martin has a passion for performance cars, on and off the road. The Cannonbawz Run originated by Kris O’Neill, immediately presented itself as an opportunity to enjoy performance cars AND raise money for charity at the same time.
Kris’s brother Liam was diagnosed with Marfan Syndrome, and as a family, they searched for support and answers. It became clear that funding was needed for essential research into the condition. Kris made it his mission to start fund-raising and the ‘Cannonbawz Run’ was born in 2015, an organised run for car and scenery lovers to enjoy a 250 or 500 mile drive around Scotland’s North East coast.
Being a participant raises funds and talking about it raises awareness, and so does sharing posts and information on social media channels and websites. So there is something that everyone can do – please check out the links below, find out more, and share what you discover.
Please contact Kris on LinkedIn if you would like to support, sponsor or participate in the Cannonbawz Run.
¿Quién es el Marfan Trust?
Los tres objetivos principales de Marfan Trust son:
- Proporcionar apoyo y orientación médica a los afectados y sus familias;
- Proporcionar literatura educativa sobre el síndrome de Marfan y todos sus aspectos a la profesión médica y al público en general, aumentando así la concienciación sobre la enfermedad; y
- Financiar proyectos de investigación médica que tengan como objetivo ayudar al diagnóstico y tratamiento de los pacientes con síndrome de Marfan
Síndrome de Marfan
El síndrome de Marfan es un trastorno hereditario del tejido conjuntivo del cuerpo que provoca problemas médicos que afectan al corazón, los ojos y el esqueleto, y que requieren tratamiento para evitar complicaciones que pongan en peligro la vida.
Afecta a hombres, mujeres y niños de cualquier raza o grupo étnico. Más de 18.000 personas están afectadas por el síndrome de Marfan en el Reino Unido, y es probable que muchas más vivan con él sin diagnosticarlo.
What is Cannonbawz really like?
It’s Fun, it’s Family-Friendly and it’s for Everyone from All walks of Life!
Take a quick look at these movies to get a flavour then check out their website
